I Used My Noggin

I actually did some thinking today. Well, I got some advice and used my noggin to follow it. Instead of waiting until my neurologist's appointment on February 4th, I called his office to tell them how badly I feel. I got a call back within the hour and was told to increase the medication I take for Myasthenia Gravis, Mestinon. I'm taking 120 mg at 3 PM instead of 90 mg. Then if I feel like I need to increase it tomorrow at my 9 PM dose, I can do that. Today, I felt a bit better after the 3 PM dose but it was wearing off at 6 PM. Tomorrow I'll try increasing the 9 PM dose and see how that … [Read more...]

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It’s Been Over Six Months

Thank goodness for my husband. He can remember phone numbers, addresses and dates too. I haven't been feeling well at all lately. I've been through low Potassium, a virus, a flare up and then found out I'm going through "The Change". But I still feel sick. My husband has been trying to figure out what is going on. He realized that it's been more than six months since I've seen my neurologist who takes care of the Myasthenia Gravis. Sure enough when I called the doctor's office yesterday, I found it was 8 months. Right after that call, I got a call from the MDA (Muscular Dystrophy … [Read more...]

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