Special Needs Kids Doctor Appointment Tips

We took our special needs kid for a doctor appointment yesterday and realized that there's so much we have to learn. I hope sharing these tips will help others and open up discussion for more information. Special Needs Child This is the first time that I'm using the term "special needs" for my daughter, Sammi. At the age of 12, she has been diagnosed with Sinus Tachycardia, Mitral Valve Prolapse, Anxiety, Depression, and Narcolepsy. She has severe indoor and outdoor allergies, enlarged tonsils and adenoids, gets frequent sinus and ear infections. She is being evaluated for sensory, … [Read more...]

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Tonsillectomy Canceled Due To Narcolepsy

My daughter's scheduled tonsillectomy was canceled because she has Narcolepsy. We learned about it the day before her surgery when the Anesthesia Department at the hospital had concerns about using anesthesia on her. She had already been cleared by her pediatric cardiologist, by the Ear Nose and Throat Surgeon and had the pre-op blood work and echocardiogram done. The news was given to us by the nurse who did the intake at the hospital. We were shocked! We had been planning this surgery for a long time, but something always prevented it. Now we thought we were in the clear, the hospital … [Read more...]

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