Fearless Disabled Traveler

Disney-Scooter

Traveling as a disabled person can create lots of challenges and cause apprehension. I travel despite the challenges and turn the obstacles into opportunities. I am a fearless traveler who makes it my mission to inform other people with disabilities that traveling is a way to feel free and more independent. Fearless Mobility I use [...]

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New Hairstyle Equals New Outlook

Who would think that a new hairstyle would help me get a new outlook on life? If you’re a woman, you may get that going from shoulder length hair to a short buzz cut is a huge change and can do things to your head figuratively and literally. From the time I met my husband, [...]

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Going Green With Nature’s Source and Giveaway

naturessource

*GIVEAWAY ENDED. WINNER ANNOUNCED.* For me going green with cleaning supplies isn’t just something I want to do to save the planet, or to teach my daughter about, it’s something I need to do for my health. I have multiple chronic illnesses. One of them is in a bad flare right now. It is called [...]

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Using A Scooter

scooter

About six years ago when I was first diagnosed with Myasthenia Gravis I was very weak and unable to do much walking at all. I had tried using a cane but it didn’t help me enough. My husband would have to push me in wheelchair but I hated feeling so dependent on him. My neurologist [...]

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I Used My Noggin

I actually did some thinking today. Well, I got some advice and used my noggin to follow it. Instead of waiting until my neurologist’s appointment on February 4th, I called his office to tell them how badly I feel. I got a call back within the hour and was told to increase the medication I [...]

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It’s Been Over Six Months

Thank goodness for my husband. He can remember phone numbers, addresses and dates too. I haven’t been feeling well at all lately. I’ve been through low Potassium, a virus, a flare up and then found out I’m going through “The Change”. But I still feel sick. My husband has been trying to figure out what [...]

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Christmas Decorating Put On Hold

We are almost done with our decorating. In fact if you came into my home, you’d think we are done. But we still have a lot more surprises to put up on our shelves, windows, in our kitchen and bathroom. Yes, we do that much decorating. For the past few days though I’ve been feeling [...]

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Bummed Out

I’m totally bummed out. I had another set back with my health. After church yesterday morning I came home and fell asleep for about 3 hours. I was expecting that since that was my first time out of the house in a long time and just taking a shower was tiring me out. What happened [...]

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I Think I Can

I’m afraid to write this. I’m even afraid to think it, but I think that I may be starting to feel better. No exclamation point because this is a very cautious statement at the moment. Last night my muscles were twitching a lot, a symptom of MG or a symptom that I took too much [...]

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Trying To Stay Positive

Having a chronic illness that is as life changing as Myasthenia Gravis has given me a new perspective on life. When I first was diagnosed with it five years ago, I went from having a drooping eyelid to being pretty much bed bound within a matter of months. I had major surgery called a Thymectomy, [...]

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Some More Good Medical News

I saw my PCP today. She already had a progress note from my neurologist, the results of my CT scan and other lab results. We had a good talk about everything that’s going on with me. She agrees to help me coordinate all of my doctors and medications as long as she is kept in [...]

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Health Update

I guess it’s time to update you on my health issues and my ever growing assertiveness as a patient. I called my Gastro doctor’s office again and again, leaving messages with both my home and cell phone numbers, asking why I was scheduled for a test that would be very difficult to go through especially [...]

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