Simon’s Fund and Children’s Heart Defects

Simon's Fund

This is one of those “meant to be” stories. Simon’s Fund is a nonprofit dedicated to screening for heart defects in children, especially Long QT Syndrome. For about the past year, my husband and I have been waiting on a definitive diagnosis of Long QT Syndrome for our 13 year old daughter, Sammi. And then [...]

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Medically Complex Child #specialneeds

So after another visit to All Children’s Hospital, my daughter has been labeled as a medically complex child. It is not something that any parent wants to hear, but it helpful when getting diagnoses and getting treatment in the medical field. Physicians are more likely to keep up to date on tests done by other [...]

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