When You’re Sick and Don’t Know Why

I have so many chronic illnesses with overlapping symptoms that when I get sick I don't know if it's just a cold, something more serious or which one of my health conditions is causing my problems. What makes it even more frustrating is that I don't know what doctor to call for advice. Because I'm on immunosuppressent meds, a cold or virus can be a big deal. It can take months for me to get it out of my system and what is "just a cold" to others can turn into something serious for me. For the past 3 days now I've felt like crud. I can hardly stay awake, my head is pounding, my throat is … [Read more...]

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Take This Job

Since I've been diagnosed with Myasthenia Gravis in 2003 our medical bills have been sky high even with an excellent insurance carrier. For over 3 years we have hit the catastrophic limit on our plan. That's even with my getting Medicare benefits last year. Organizing and paying the bills, being sure that doctors' offices, hospitals, pharmacies, labs, etc. all have the correct insurance info, sending the paid receipts to my hubby's Flexible Spending Account, then getting all of this info ready at tax time (including milage and tolls) is a job in itself. Keeping track of doctor, lab, and … [Read more...]

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Drunk Dialing

I learned a new bit of terminology today. This will probably show my age. Drunk Dialing - you get drunk and make phone calls. The callee is usually an ex. I guess now with cell phones so handy it's even easier to make that call you'll regret the next day. I kinda remember doing this when I was much younger. But I'd have to use a phone that had a cord attached to it, pull the phone to the point of almost pulling the cord out and hide in a bathroom to speak very quietly. My drinking days are now over, my phone is cordless and I don't hide in bathrooms. Now if I could only learn to think … [Read more...]

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Night Out With the Girls

I had dinner out with a some women I know from a Mom's meetup group I belong to. It's always nice to get out of the house especially without children. It was a lot of fun. I ate too much and spent too much, but it was worth it. This is something that people with chronic illnesses should try to do. Of course at their own pace. But it's good to be around people who aren't sick so we don't focus on our health. It's nice to just talk about "normal" stuff. If I'm not feeling too badly I can get my mind off of my aches and pains. I can talk and laugh (even at myself!), and pretend I'm not … [Read more...]

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Learning and Relearning

I used to be really smart. Not just the kind of smart where I had to study to get good grades in school. The real smart. I could take a test without much studying, write a paper off the top of my head, speak well, etc. Sorry, I'm not bragging. It's just that with all of my health stuff, I've lost that. It's sad, frustrating and makes me feel less confident at times. I now have an anger problem. I get angry easily if things don't go my way especially if it has to do with something I know I should know. This is not a pity party. Just letting others with chronic illnesses know that Brain … [Read more...]

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