Back To School For Kids With Special Needs

Getting ready for back to school when you have a child with special needs is exciting, but stressful too. Maybe a bit more on the stressful side actually, for parents and for the child too. This is our first year of going back to school with medical and psychological diagnoses. With that comes more preparation than before. Along with getting our daughter, Sammi, up to date on her shots, we needed to have paperwork filled out by her doctors and other forms completed. We're also preparing her mentally and physically. Preparation is Key Instead of getting supplies and paperwork completed … [Read more...]

Want to remember what's going on here? Get more Brain Foggles in your feed reader or in your inbox.

Blogging Through Life Changing Events

I share about my personal life and about my family on my blog and when life changing events happen, I write about them. They may not always be positive things, like my daughter's wedding.  Negative things happen too, like my uncle passing away, and not writing about it would seem like I'm leaving out a big part of my life. I've dealt with my mother's breast cancer, my ongoing health issues and currently my daughter's medical conditions. It helps me to share my feelings and in return I share information and resources with my readers. If you've blogged about life changing events or are … [Read more...]

Want to remember what's going on here? Get more Brain Foggles in your feed reader or in your inbox.

Disney World Trip With Special Needs Daughter

We spent 6 days at Disney World. Not new to us, as we are frequent Disney visitors; however, it's new to us that our daughter has serious medical issues and is considered a special needs child. We have traveled to Disney when she was diagnosed with some medical conditions, but things have gotten worse since then. I wanted to share some tips with you that we learned along the way in hopes that this will help another parent out. Tips For Special Needs Children At Disney World Hotel rooms on Disney property have a variety of accommodations for all of their guests. Need a wheelchair … [Read more...]

Want to remember what's going on here? Get more Brain Foggles in your feed reader or in your inbox.

Waiting For Genetic Testing Results

Waiting for genetic testing results is nail-biting scary. Most genetic testing also takes a long time, so that adds to the worry. Recently my daughter, Sammi has undergone genetic testing for Narcolepsy and for Long QT syndrome. Both tests take about 8 weeks to get results. The Narcolepsy genetic testing can have some false positives, but we decided to have it done. My husband and I feel that if it comes back negative and her next sleep study (after her tonsillectomy) comes back normal, we're on the right track. Then we'll see if Narcolepsy and other sleep disorders can be ruled out. We'll … [Read more...]

Want to remember what's going on here? Get more Brain Foggles in your feed reader or in your inbox.