Tween Parenting Blog
And so bravely, she got out of the car and went back to school on Monday after being taught from home for part of last school year and most of the summer. She had to stand among the crowd of students and wait for the bell to ring, just after saying she felt sick to [...]
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Getting ready for back to school when you have a child with special needs is exciting, but stressful too. Maybe a bit more on the stressful side actually, for parents and for the child too. This is our first year of going back to school with medical and psychological diagnoses. With that comes more preparation [...]
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I share about my personal life and about my family on my blog and when life changing events happen, I write about them. They may not always be positive things, like my daughter’s wedding. Negative things happen too, like my uncle passing away, and not writing about it would seem like I’m leaving out a [...]
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We spent 6 days at Disney World. Not new to us, as we are frequent Disney visitors; however, it’s new to us that our daughter has serious medical issues and is considered a special needs child. We have traveled to Disney when she was diagnosed with some medical conditions, but things have gotten worse since [...]
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Waiting for genetic testing results is nail-biting scary. Most genetic testing also takes a long time, so that adds to the worry. Recently my daughter, Sammi has undergone genetic testing for Narcolepsy and for Long QT syndrome. Both tests take about 8 weeks to get results. The Narcolepsy genetic testing can have some false positives, [...]
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