Hemispherectomy Foundation – Nonprofit of the Month

Hemispherectomy Foundation

The Hemispherectomy Foundation was founded to offer support and information, to raise money for camps, scholarships and to other financial needs of families who are touched by a child having a hemispherectomy or similar surgery. Care packages are sent to children in the hospital recovering from this surgery and information about this group is being [...]

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World Autism Awareness Day

Autism Awareness

Today is World Autism Awareness Day. Although I am not personally affected by Autism, I have many friends whose children have been diagnosed. My daughter, Sammi has friends who are in the Autism Spectrum. And as an advocate, I want to do my part to make sure that others are aware of this day and [...]

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How to Find Pediatric Dentist for Your Special Needs Child

Dental Work

Here are some suggestions to help you find the right pediatric dentist for your special needs child. With a bit of time, research and knowing what to look for, you’ll be happy when you find the perfect fit between a dental office and your child because this is a relationship that can last years. Be [...]

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Back Online After Surgery

Sadness

It’s finally happened! I’m back online after recovering from surgey. Two long weeks of feeling cut off from the outside world, but with complications I couldn’t help it. I plan on taking it slowly so as not to have any flare ups. But I sure have missed keeping up with my friends, social media and [...]

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My Health Update

hydronephrosis by ultrasound

It’s about time that I gave you an update on my health. Since I haven’t been feeling well, I haven’t been blogging. I’ve pretty much given up on social media, except for a few tweets and facebook updates. So here goes: Back around Thanksgiving, I was diagnosed with kidney stones. I passed one, but still [...]

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Two Kidney Stones and A Partridge in a Pear Tree

kidney stone pain

The holiday season and the songs that we remind us of good cheer bring a twinkle to my eye and a pain in my side. It’s really not because of the holidays or the songs, but probably because of all of the medications I take, that I developed kidney stones over Thanksgiving. I take a [...]

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Speak Now For Kids and Support Children’s Health Programs

Speak Now For Kids

Speak Now for Kids is an advocacy campaign of the National Association of Children’s Hospitals (N.A.C.H.) created to help us communicate with congress about children’s health programs. They need our help now because two very important programs are facing cuts: Medicaid – funds health care coverage for one in three children in the U.S. and [...]

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National Diabetes Awareness Month with Better’n Eggs

Better'n Eggs

November is National Diabetes Awareness Month and the Mamavation community wants to help lessen the effects of  Type II Diabetes with Better’n Eggs products. This chronic disease affects 25.8 million children and adults in the U.S, but it can be prevented. Unfortunately, I know too much about Type II Diabetes, since it runs in my family. [...]

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Tonsillectomy Tips for Parents

Good-bye Tonsils Book

After my daughter had her tonsillectomy, I learned so much about how to make her recovery easier. I wanted to share some tips for parents whose children are scheduled to have their tonsils removed. Even with the information from our ENT doctor’s office, there was a lot more suggestions provided to us from their staff [...]

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12 Year Old Tonsillectomy Experience

Pre-Op Room Waiting for Tonsillectomy

As of today, it’s been one week since my 12 year old had her tonsillectomy. I hope that sharing her experience will help other parents who have a tonsillectomy and adenoidectomy planned. Of course, this isn’t medical advice, instead a mother’s retelling of what my daughter has been through before, during and after this surgery. [...]

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Waiting For Genetic Testing Results

Waiting for genetic testing results is nail-biting scary. Most genetic testing also takes a long time, so that adds to the worry. Recently my daughter, Sammi has undergone genetic testing for Narcolepsy and for Long QT syndrome. Both tests take about 8 weeks to get results. The Narcolepsy genetic testing can have some false positives, [...]

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Medically Complex Child #specialneeds

So after another visit to All Children’s Hospital, my daughter has been labeled as a medically complex child. It is not something that any parent wants to hear, but it helpful when getting diagnoses and getting treatment in the medical field. Physicians are more likely to keep up to date on tests done by other [...]

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