And so bravely, she got out of the car and went back to school on Monday after being taught from home for part of last school year and most of the summer. She had to stand among the crowd of students and wait for the bell to ring, just after saying she felt sick to her stomach. I prayed that one friend would find her and make her laugh, help her forget about that her stomach was queasy. But I had to pull away as there were so many cars behind me pushing their way forward to let their children out on this first day of school.
The night before, her clothes were set out, her book bag was packed, but sleep alluded her. She tossed and turned, got up for water, to use the bathroom, trying to get the sleep she so desperately needed. When she did fall asleep, it was fitful. Every little noise awoke her and for what seemed like minutes later, her sleepy eyes peeked at my from under the covers the next morning, begging me for “5 more minutes”.
Better to wake her up early and let her sleep in a bit. Better to have everything prepared the night before, so she is the main focus in the morning. Even though it takes her longer to get ready than in years past, I try to be patient. My mood is essential to her getting off to a good day at school. So I bite my tongue and help her with tasks that she would normally do on her own. She’s out of it, still feeling sleepy, so I can’t blame her.
Two classes a day at school (from 9 AM to 11 AM) and she’s worn out. She yawns in class, has trouble staying on task, but is grateful that the teacher is animated. Plus it’s two hours of reading – Language Arts and Critical Thinking – something she enjoys very much. When it’s time to leave, you can see it on her face, in her eyes, the tired look that comes over her, that she can’t control.
Back home, she eats lunch and takes a nap. So far it’s been about an hour each day. Then, homework, getting everything ready for the next day, a little TV, some time on the computer. Feeling tired again, but can’t sleep so close to bedtime. Eat dinner, take a shower, read, try to stay awake until bedtime. And it begins again the next day.
My daughter, with a diagnosis of Narcolepsy, going back to school so bravely.