Sinus Tachycardia Sammi Update

Sammi has been diagnosed with Sinus Tachycardia about a month ago. We don’t have an answer as to what is causing her heart rate to race and she’s just had a few episodes again Monday, Tuesday and today.

We have the pediatric cardiologist’s cell phone number to call when an issue comes up. She’s able to get the readings from the Event Monitor that Sammi uses when she has any kind of symptoms. She feels dizzy, weak and has chest pain when she has a high hear rate. On Monday, the doctor said that she needed to rest and then depending on how she felt either stay at school or come home. She stayed at school not because she really felt well, but because she’s had excessive absences according to the school. Yes, I told her to stay at school, which I totally regret now.

Yesterday, the doctor said we needed to get her to All Childrens as soon as we could. Unfortunately we had to see a different doctor, who told us that we’re going to try to increase her water intake to see if that helps. Not a definite answer, but something to try. She would still stay in PE as well.

Today, Sammi was in PE and felt weak and “out of it”. She laid down on the floor until PE was over. (No, the coach didn’t check on her.) * Her friends helped her to get changed into her clothes and then took her to the clinic, where her heart rate was 168. I was called of course and drove there. My husband called the first doctor, who made the decision to take her out of PE and I took her home.

*UPDATE – I have to clarify this. I questioned Sammi about exactly what happened at PE before my husband and I spoke to the principal. Instead of not participating after feeling weak, Sammi got up and took part in PE after resting on the floor. She didn’t tell the coach that she wasn’t well even when class was over. Although I believe that the coach should have checked on my daughter, it makes it a bit more understandable why she didn’t notice her. We’ve decided to ask all teachers to be informed of Sammi’s condition again and to speak to the principal as well.

We’re still working with Sammi to drink more water, to take deep breaths when she isn’t feeling well, to move slowly from a seated to standing position. We’re also going to be talking to the school and letting them know that our child is in their hands when she is there. We expect her to be safe. We also don’t want to hear that she has excessive absences when they are medically excused.

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Connie Roberts

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Living in the Tampa Bay area, I'm lucky enough to see beautiful sunsets almost every day. Although life can be difficult at times, focusing on the positive and being with my family is what gets me through.

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Comments

  1. Wow. It upsets me so much that the teacher didn’t even bother to check on her. She should have at least been sent to the nurses office the minute she started feeling bad. How can any teacher or “coach” ignore a child laying down the entire class? That’s just horrible. Heck the way I remember it you could complain of anything and the teacher’s response would always be “just go see the nurse” so they didn’t have to deal with it.

    I really hope they don’t give you a problem with her medical absences. I have a close friend who fought with the school board and lost over her son missing too many days because of his seizures even though he was medically excused. She argued that she tried to get him placed on home bound and was given the run around and told his situation “wasn’t severe enough”. She lost the battle, and her son repeated 5th grade even though he was a great student.

    I totally don’t agree with these “one size fits all” policies most school districts have today, and I believe if a child is making good grades medical absences should NOT count against them.

    Have you considered the possibility of pulling her out and sending her to one of the online schools? We’re considering that route with Ellie anyway now that most states have online public Charter districts. It would allow us to keep her in public school but at home where I can make sure she’s being taught appropriately without having to pay for homeschooling material.
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  2. Scary stuff there! I hope the doctors get it figured out for you, I’m sure it’s frightening to her. It’s the school’s legal obligation to look out for her from the moment she gets on the bus in the morning. Them not checking on her is inexcusable. If she continues to have absences you may want to consider bedside instruction. Mom could tell you more about this but it’s where she’d be visited by teachers from her own school and get her own work. We have it written into my youngest son’s IEP that if he misses so much school he automatically gets home based instruction until he’s better. Good luck, lots of love.

  3. I am so sorry! Schools suck at times. Soe kids can be excused for sports, others get out for family trips, but they want to pick on the sick kids! I’m praying for her and you.

  4. I am so sorry! Schools suck at times. Soe kids can be excused for sports, others get out for family trips, but they want to pick on the sick kids! I’m praying for her and you.
    tell the school to shove it.

  5. I’m so sorry, Connie. I can only imagine how scary and stressful this must be. I’d say let the school be the furthest worry from your mind. While I know we’re all fighters when it comes to our children, your energy can be so much better expended on your little girl, rather than fighting the bureaucrats. You may be able to look into online charter school as an option just until things get sorted out. Thinking of you!
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  6. I definitely would start working up the ladder with the school. They shouldn’t have left her alone to fend for herself at all. Plus, there should be some sort of exemption for medical. Let us know if there is anything we can do for you. Write letters, emailed them . . . maybe the media needs to be alerted.

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  4. […] to let her know that she cared. Little by little, she opened up and told them about her diagnoses: Sinus Tachycardia, POTS (Postural Tachycardia Syndrome), and just a little bit about […]