Some Answers

Today I saw the Neurologist and begged for help with the way I’ve been feeling. I didn’t need to beg because he knew that I was sick. He could tell just by looking at me and hearing me speak.

My last blood test came back normal. That was my CBC. The only thing he could do now was have me slowly increase the Mestinon. After 4 weeks if I don’t feel any better I am to call him. The next thing is to increase the Cellcept, not good as this is one of the immunosuppressants I take. So I’m praying that the Mestinon works.

He’s also going to have me get my Potassium tested every 2 months and work with my Primary Doctor not the Nephrologist, since he said he can’t even comminicate with him. And after promising me that he would get my Potassium up to 4.0 it’s never been that high.

The upsetting thing was that he didn’t get the report from my Opthamologist about his concern with the eye pain I’ve been having. I’m sure that once he does though, that either I or he will get a call about what he recommends. It was frustrating that the info wasn’t there while I was.

I am to see him again in four months instead of six. Onto increasing meds now.

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Connie Roberts

Professional Blogger
Living in the Tampa Bay area, I'm lucky enough to see beautiful sunsets almost every day. Although life can be difficult at times, focusing on the positive and being with my family is what gets me through.

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  1. Oh Connie, I’m glad to hear your Doctor listened, and could tell without even asking that you need help. Hope the meds start working quickly 🙂

    Heather in Beautiful BCs last blog post..Bald Eagles in Comox, British Columbia

  2. Awe darl, I hope everything is ok! Let us know about the results from the Opthamologist. *big hugz*

    LadyGraces last blog post..OK so….

  3. Hope all works out okay and sorry to see all the problems you are going through with communication between doctors. It’s enough to not feel well but when you have to follow up on your doctors it can be quite stressful. Take care.

  4. i hope you get everything worked out ok. i’m so sorry you have to increase your meds. i know what a bummer that is.

    cadys last blog post..Back to the Drawing Board

  5. I’m sorry to hear about your issues and hope everything turns out good for you. In the meantime, try to find something beautiful and smile. It can be a pretty flower or a happy memory, anything you can feel good about. Take care, my friend!

    daria369s last blog post..New U.S. Health Secretary

  6. Shame that the doctors can’t just get to the bottom of it. It must really be making our life miserable.

    Owens last blog post..Some Twitter honey

  7. Erm .. that was “your life” .. not “our life”

  8. I hope you find out what is wrong soon and you can back off the medicine instead of increase the doses. Do you know what has caused the low potassium levels?

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  9. Aww, I am hoping that everything will be alright.. Keep us updated..

    Bhings last blog post..Honest Scrap

  10. I hate that you are in so much pain. I really hope you are able to get he relief you need. I’ll be thinking about you.

    Dorés last blog post..Gmail sucks @$$ tonight!

  11. I am so sorry you’re going through this … I hope they can figure it all out soon. 🙁

    Creative Junkies last blog post..Let’s lose my virginity all over again! It’s *GIVEAWAY* time!

  12. That must be so frustrating for you! Lots of prayers for you-healing and relief.

    Paulas last blog post..The Morning Rush: 9 Tips to Reduce the Stress

  13. Every single comment above expresses my feelings and thoughts for you, too! When they say doctors are “in practice” or “practicing” unfortunately, that’s sometimes too close to the truth. I’m just sorry you’re almost a guinea pig at this point! Prayers to you!

    Diane Scotts last blog post..Get Paid to Play Video Games

  14. I hope everything gets sorted out for you. I have fibromyalgia so I can understand to a degree about the frustrations of doctors communicating with each other to try and get things right for you. Keep your chin up. Thinking and praying for you and those doctors who’re trying to help you.

    Farrah from Wife and Mom of 3s last blog post..Friday YouTube…Evolution of Dance