This week while listening to people call into the conferences of Invisible Illness Week, there was one common point I kept hearing over and over. People who have chronic illnesses especially those who have an invisible illness often feel misunderstood. So true! I can definitely relate to that.
When I was first diagnosed with Myasthenia Gravis even my own family didn’t understand how I could be so sick when all they could see (sometimes) was a droopy eyelid. Finding the comfort of others who are like you and who can relate to you helps so much.
When I was practically bed bound I found a website for people with MG and joined right away. It felt so nice to “meet” other people that were living with the disease and could help me along with my new way of life. They gave me hope, especially when I was going in for major surgery.
I know of bloggers who are members of other types of forums that are geared toward their interests. It’s nice to know that there’s even a site that offers Christian Chat Rooms for people who want to meet others with the same religious beliefs. I’ve also heard about sites for people who are caregivers and chat rooms for people looking to find love or just a date. As a matter of fact there’s one person I know on Twitter who writes about finding love online all the time! I’ve even met some people who married people they met online.
Who knows what someone will think of next?
We have a chat room called Peace in Chronic Illness at http://peaceinchronicillness.blogspot.com/ which is a real blessing to us, allowing us to make friends who do understand. We also pray together — that’s amazing and a great blessing.
To be honest, for a few who are homebound or nearly so, it’s almost a lifeline.