To The MDA We Go

A little over four years ago I was diagnosed with a rare nueromuscalar disease called Myasthenia Gravis. MG is also an autoimmune disease, of which I have many. Leave it to me to be diagnosed with a disease that no one can pronounce or has even heard of!

Today was my four month check up. I go to the MDA clinic in St. Pete. My neurologist is fantastic. Today’s visit with him was around 20 minutes and about 10 minutes with his nurse Sharon. Where can you find doctors like that?

No matter how often I go to the clinic I still get a bit nervous. The whole day is stressful for me. I don’t really know why. It’s not like my doc is going to find anything wrong. I’d know it if I was worse. I’d be calling his office or at the ER before my visit. I think it’s just remembering the old stuff, the bad days. This is the office where I was told I’d need a thymectomy, surgery to remove my thymus gland. This is like open heart surgery where they crack your ribs and tie them back together. This is the office where I was told I’d need to start immunosuppressant therapy. Not good meds to be on, but very necessary in my case.

But this is the office where my doc is like my buddy, where I was told the thymectomy was working and I could lower my meds, where I went from being practically bed-ridden to being able to walk and drive, to losing my slurred speech, to being able to hold up my head.

The MDA is a great organization. They’ve helped me and my family so much. They’re just a phone call away. All of my clinic visits are free and they paid for my handy dandy scooter that I can use to get around Disney. When you get a chance to donate to them, please do.

Scooter for Disabled

The following two tabs change content below.

Connie Roberts

Professional Blogger
Living in the Tampa Bay area, I'm lucky enough to see beautiful sunsets almost every day. Although life can be difficult at times, focusing on the positive and being with my family is what gets me through.

Latest posts by Connie Roberts (see all)

Want to remember what's going on here? Get more Brain Foggles in your feed reader or in your inbox.

I may receive monetary compensation or other types of compensation for my endorsement, recommendation, and links to any products or services from this blog. This site may contain affiliate marketing links, which means I may receive a commission on sales of those products or services that we write about. The editorial content is not influenced by advertisers or affiliate partnerships. I always provide you with my own thoughts, concerns, and recommendations about the subject matter on this blog. This disclosure is provided in accordance with the Federal Trade Commission’s 16 CFR § 255.5: Guides Concerning the Use of Endorsements and Testimonials in Advertising.

Speak Your Mind

*

CommentLuv badge